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10 months ago in Health Research By Usha K

How do i ethically collect patient data for research?

I'm designing a study that needs patient records. What's the right way to collect this data without violating privacy or ethics?

ResearchEthics

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By Pavitra Answered 10 months ago

You must follow a strict ethical and legal protocol. Options: 1) Primary collection: Surveys or interviews with informed consent. 2) Secondary use: Request anonymized, aggregated data from hospital records or national databases, but only after IRB (Institutional Review Board) approval. 3) EHR extraction: Use approved queries within a healthcare institution, ensuring you only access necessary fields. Patient privacy is paramount HIPAA, GDPR, or local equivalents aren't bureaucratic hurdles; they're the framework that protects real people. Always consult your institution's data governance office before collecting a single record.

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